A way for family and friends of Pat Mensing to keep up with her.

Thursday, December 11, 2008

Home, Week 37, New Chemo Round 1

Mom had the first round of the new chemo on Tuesday. The way this drug is going to work is she'll have chemo on a Tuesday, and that first week she'll start to wear down. The second week is her seder, and that's when her numbers are down the tube. The third week she picks back up and feels good. Then she has chemo again the following week, and the cycle starts all over again.

Friday, December 5, 2008

Home, Week 36

Good news, Mom's CA-125 only went up to 491 on this break, so getting down to cancer-free is not going to be as long of a journey as it could have been. She starts on Tuesday, so we'll see how things go. This drug is supposed to make her hair fall out and her blood counts go low, so it'll be a tough ride, but if it works, it will be worth it. Keep her in your prayers, she'll need the strength again.

Tuesday, November 25, 2008

Home, Week 34.5

Mom is still going strong. We're going down to visit my dad's family for Thanksgiving, so the three of us (we're driving my dad down) will be heading out on Thursday. It will be wonderful to see the family again, it's been awhile.

Tuesday, November 18, 2008

Home, Week 33.5

Mom's strength is slowly coming back while she's on this break. Her blood counts are good, her spirits are up, and hydration only twice a week is a nice relief as well. She's even driving herself to hydration while I do things around the house.

Tuesday, November 11, 2008

Home, Week 32.5

The decision has been made to take a break from chemo until after Thanksgiving. The drugs she's been on aren't working, and her body needs a break. After Thanksgiving, she'll be starting a new drug that will hopefully knock the rest of this cancer out.

Tuesday, November 4, 2008

Home, Week 31.5, Chemo Round 7

Mom has decided to go to hydration twice a week. Going three times a week is a bit of a drag, and she hasn't needed the nutrients like she used to, so things are getting more under control.

She's having the same chemo today that she's been having, but we'll be going to the doctor this week to setup the new game plan. Keep her in your prayers, she could use the help with this situation. God Bless.

Friday, October 31, 2008

Home, Week 31

Mom's CA-125 has gone back up some. It went from 401 to 474, which shows that while the one drug may be keeping her numbers from skyrocketing back up, it's certainly not keeping the cancer at bay, so we'll be seeing the doctor to figure out what the new plan of attack will be.

Monday, October 27, 2008

Home, Week 30.5

It's the week off of chemo, and Mom needs platelets. We've talked to her doctor, and have decided to stay the current course for now, with just the one chemo drug, as adding any of the other possibilities would have side effects that Mom isn't ready to deal with right now.

So as long as the one drug is effective, that's what she'll be doing, unless she decides she wants potentially faster progress, and is willing to deal with the side effects (hair loss, nausea, blood counts going down more than they are now).

Monday, October 20, 2008

Home, Week 29.5

Second dose of this round, still the milder drug only, but we've been doing some research as to what other chemo drugs would be viable options given her situation. The double drug treatments really work well to confuse the cancer cells, because while they're trying to build an immunity to one drug, the other one comes in and kills them off. We just need to find another drug that can work as the second drug.

Thank you for all the continuing thoughts and prayers, Mom really appreciates them, and enjoys the cards and phone calls. God Bless.

Monday, October 13, 2008

Home, Week 28.5, Chemo Round 6

Nothing eventful, just the start of a new round of chemo. She's not doing two drugs for at least this round, until we can figure out what other chemo drug would work well.

Friday, October 10, 2008

Home, Week 28

Mom's CA-125 dropped down to 401. She only had 1/3 of a bag of the one drug that she had reactions to, so her numbers didn't drop as much as she would have liked, but 65 points is 65 points. =)

She'll only be doing the one chemo drug for a couple rounds (starting Monday), but we're figuring out some other chemo drugs she could take along with her current one in the interim.

She lost more weight, so she was down 70 pounds total, but she's gained 2 pounds recently! Never thought that would be a happy thing, but life is funny like that.

The next few weeks should be relatively calm, since she is only having the milder chemo drug, but we do have a couple doctor appointments that may turn up some interesting ideas, so we'll keep you updated.

Thank you for the thoughts and prayers, and God Bless.

Monday, October 6, 2008

Home, Week 27.5

Week off of chemo. We talked to the doctor last week, and have a game plan for getting Mom back to a two-drug regimen, which seems to keep the cancer confused enough that it can't build up a resistance to just one drug. If that game plan doesn't work, there are a TON of other chemo drugs out there, it'll just be a matter of figuring out which ones would be the best options for Mom and her specific situation. Her platelets are low, as well as her white count (one of the many fluctuations), but that'll be taken care of today.

She had a Silpada event she went to Friday night, and had a great time. In case you haven't seen the new catalog, you can go to her Silpada website and check the new jewelry out: http://www.mysilpada.com/pat.mensing . She's still working on doing catalog parties, or even individual orders, and when she gets enough energy, she'll be out doing home parties, with a little assistance from either myself or another Silpada representative in her group. She also has some retired jewelry that she's selling from her inventory at 30% off, so if there's something that you had your eye on from the last catalog, and don't see it in this catalog, you may still be able to get it. Just give her a buzz or an e-mail and ask her. =)

The room is still available for rent, and we've advertised it on CraigsList for a few weeks now, so if you hear of anyone, even if it's just a temporary situation, let her know. =)

Thank you and God bless.

Monday, September 29, 2008

Home, Week 26.5

Chemo day again. Just the single, non-reactive drug today, so nothing exciting going on. She bounced back after her reaction the next day, and was good all week. She's also been keeping her nutrients in her body, so when she does get hydration, it's just saline most of the time. =) Her red and white blood counts fluctuate, so she gets shots to help keep those numbers up.

Monday, September 22, 2008

Home, Week 25.5, Chemo Round 5

Double-drug chemo day. We've done all the preventative measures we can take, and after a third of a bag of the second drug, Mom had a reaction. Turns out, these reactions (flushing, chest tightening, higher blood pressure and pulse) can be life threatening, but the nurses have been so calm about things externally that we had no idea. They stay in her room and keep an eye out on her when she has a reaction, and do their charting in here, just to make sure she's okay. They keep the necessary things around in case the reaction does get too severe, but they've been taking care of it before it gets to that point, thank God. So we need to figure out a new game plan, because her body is definitely not happy with this drug.

Friday, September 19, 2008

Home, Week 25

Mom's CA-125 is down to 466 now! Because of the reaction she had, she only had half of a dose of one of the chemo drugs, so hopefully it will drop even more after this next round, but 100 points really isn't bad. =)

Thursday, September 11, 2008

Home, Week 24

Mom is feeling much better. She's back to eating normal foods and keeping them down, so this stint of nausea and mild dehydration are over. Skinny mini super model Mom is still losing weight because the quantity of food she's eating isn't what it was before the bowel obstructions started. She's lost a total of 60 pounds now. Her sister was out in the middle of last month and cut her hair again, so she's looking glamorous as ever. When I have access to my scanner, I'll put a new picture of her up. I love her laughing smile in the one that's currently up, so I'll keep that one up too. =)

Thank you all for continuing to keep up on Mom and her status. Everyone at RHI, she misses you so much and can't wait to come back. It touched me so much when we would come in and you guys would say "the blog", and everyone knew what you were talking about. Mom couldn't ask for a better company or group of co-workers.

I know I've told some of you this when we've seen you, but I want to make sure everyone knows this. Things have been kinda crazy at the house, so please don't take it personal when Mom doesn't call. Don't let it stop you from calling her, as she really enjoys talking to her loved ones, it gives her some sense of normalcy. Having it just be her and I in the house certainly isn't normal for her (or I, lol). We've been in the hospital for hydration and/or chemo on Monday, Wednesday, and Friday mornings, so that would be an ideal time to call her cell phone.

Oh, and while I have your attention, we're looking to rent out the bedroom that Brooke moved out of. We've had it repainted, and have a twin bed available if that's needed. The ideal renter would be a single female. Mom is asking $750 a month with a $400 security deposit. That includes laundry and kitchen privileges, and she would have her own bathroom. Utilities included are water, electric, basic cable, and garbage. If you know of anyone that would be interested, please give them the home phone number (if you need that number, put a comment in and we'll give it to you).

Thank you and God Bless. =)

Monday, September 8, 2008

Home, Week 23.5

Mom's stomach was a little off all week, and the nausea hit yesterday. She didn't get dehydrated to the point of needing to go to ER, she was able to finally keep some crackers and water down, but it did make her day uncomfortable.

At the doctor's appointment, it was decided that she'll keep on with the same drugs for one more round, but try some different preventative medications so that she hopefully won't have a reaction. This combination has been working so well, it would be a bummer if she had to stop it.

It looks like we're back in the same pattern that we were in when she was in the hospital. Her progress would soar, she'd have a small setback, and then get back up and rolling again, so this is just a minor setback, I pray.

Tuesday, September 2, 2008

Home, Week 22.5, Chemo Round 4

Mom is having reactions to one of her chemo drugs, so we're going to have to switch some things around. The one she gets twice per round is fine, but with the one she gets the first part of each round is causing her to get flushed and nauseous and her chest to tighten up. She's doing fine otherwise, we'll just have to talk to the doctor and see what else can be done, because this is the second time she's had the reaction, so this isn't going to work.

Keep her in your prayers, they're working to help drop her numbers, now we just need to find another way to make things work, so make that little note in your talks. =)

God Bless.

Thursday, August 28, 2008

Home, Week 22

Well, Mom's platelets were too low for her to get chemo on Monday, but she'll be able to get it this upcoming Tuesday. However, we got some more fabulous news. Her CA-125 is down to 571! Her positive attitude and all of your prayers are working! Thank you all so much for your love and support. =)

Tuesday, August 19, 2008

Home, Week 20.5

Mom got her CA-125 measured again. After three full sessions of chemo, she's down to 670!

Thursday, August 14, 2008

Home, Week 20 (Dragonfly Story)

Mom and I (and Brooke) have been talking about getting dragonfly tattoos when Mom has kicked this cancer's butt. Mom loves dragonflies, and has wanted a tattoo for awhile. I was looking up different pictures of dragonflies, and found this story, which totally applies. The dragon fly is symbolic for change and rebirth. The story is called "The Dragonfly":

Once, in a little pond, in the muddy water under the lily pads, there lived a little water beetle in a community of water beetles. They lived a simple and comfortable life in the pond with few disturbances and interruptions. Once in a while, sadness would come to the community when one of their fellow beetles would climb the stem of a lily pad and would never be seen again. They knew when this happened; their friend was dead, gone forever. Then, one day, one little water beetle felt an irresistible urge to climb up that stem. However, he was determined that he would not leave forever. He would come back and tell his friends what he had found at the top. When he reached the top and climbed out of the water onto the surface of the lily pad, he was so tired, and the sun felt so warm, that he decided he must take a nap. As he slept, his body changed and when he woke up, he had turned into a beautiful blue tailed dragonfly with broad wings and a slender body designed for flying. So, fly he did! And, as he soared he saw the beauty of a whole new world and a far superior way of life to what he had never known existed. Then he remembered his beetle friends and how they were thinking by now he was dead. He wanted to go back to tell them, and explain to them that he was now more alive than he had ever been before. His life had been fulfilled rather than ended. But, his new body would not go down into the water. He could not get back to tell his friends the good news. Then he understood that their time would come, when they, too, would know what he now knew. So, he raised his wings and flew off into his joyous new life!

Monday, August 11, 2008

Home, Week 19.5

Mom was able to have her second dose of chemo on time! She's been using a new medication that's been helping with her ostomy output (she had been leaking almost every day, sometimes two or three times a day), getting things to thicken up and lessen the output. Well this has been keeping her nutrients and electrolytes in her system as well, so she didn't need as much outside help, which is wonderful. Her ostomy is also cooperating more. =)

Monday, August 4, 2008

Home, Week 18.5, Chemo Round 3

Mom's changed her chemo days to Mondays so that when she needs to get shots or hydration afterwards, we don't have to go up to Walnut Creek for those things. Today was the first dose of round three. She's doing great, keeping her levels up with a little help, so things are positive.

Thursday, July 31, 2008

Home, Week 18

*happy dance* Mom's CA-125 dropped down to 773!!! We cried with relief today when we saw the lab report, it was so wonderful to see a number below 1000, not to mention so far below 1000. This confirms that all this stuff that Mom is going through is worth it. Keep her in your prayers, they're definitely working! Oh, and Mom has now been home as long as she was in the hospital, so the rest is all gravy.

Tuesday, July 22, 2008

Home, Week 16.5

Mom had a looooooooong day yesterday. She and her sister-in-law were at the hospital until midnight last night getting all sorts of infusions. Blood, platelets, electrolytes, you name it. But she's in good spirits, and her strength is up. Things are looking good. =)

Friday, July 18, 2008

Home, Week 16

Mom's white count wasn't high enough on Monday for her to get chemo, and then her hemoglobin wasn't high enough on Wednesday for her to get chemo, but chemo was able to happen today. Mom's a little tired, but happy. The new anti-nausea pills are still working, so that's a blessing.

I pick up the moving truck tomorrow to move my things into storage. Moving is soooo not fun. Luckily, I have wonderful friends in Florida that will be helping me move things into the RV and the moving truck.

Brooke and Joel packed up her things, as well as the things they got from his family members up here, and will be heading out early tomorrow morning to get to San Diego.

Mom is going to her niece's wedding tomorrow (congratulations Shelly!), so she's looking forward to that. She's on her break now from chemo, so time will tell if she just needs the one week off, or if her body needs more time to recover. Round two down. God bless.

Monday, July 7, 2008

Home, Week 14.5, Chemo Round 2

So since chemo was bumped from last Friday to today, I bumped the blog (temporarily) to Mondays. We should be back to Fridays in a few weeks. Mom had hydration and chemo today, and lab results. Her CA-125 is down to 1330! She is also trying a new anti-nausea pill that's working great to help her deal with the chemo drugs. So things are looking up. She said that her count going down so much (340 points after one treatment) made all the hydration and shots worth going through. We're all very hopeful.

John and I started out on the road today. It'll probably be a six day trip to FL since I'm the only one driving, but we'll be back before the end of the month. I'll keep the blog going though, by talking to Mom while we're gone. Until next week, God bless. =)

Friday, June 27, 2008

Home, Week 13

Mom has had hydration every day this week too, as well as shots to increase her white count, red count, infusions of platelets, and infusions of blood. She's getting stronger now, feeling back to her somewhat normal self, but she's definitely not strong enough for chemo. She may be strong enough this next week, but as that's July 4th, if she does get chemo, it would be the following Monday.

I (well, John and I) head out for Florida for about two weeks on the 7th. It will be a whirlwind packup and move, as his doctor doesn't want him gone for too long, in case something happens. Thank goodness I have great friends out there that are willing to help me move DOWN three flights of stairs (the same friends that helped me move UP those same three flights last year), so John can just kick back and "supervise". =)

Brooke is planning her move for the weekend of the 19th, so if John and I are able to do the traveling and the move in two weeks, we'll be crossing paths like ships in the night. The good news is, if we do take a little bit longer, Mom's sister-in-law will be here to hang out and make sure she's taken care of.

That's about it for now, there's still more shots and hydrations planned for this weekend and next week, so we'll just see how long things have to go. Keep Mom in your prayers, she needs all the strength she can get to fight this cancer. God bless.

Friday, June 20, 2008

Home, Week 12

Mom has had to get hydration every day this week, plus shots to get her white counts up, something to get her red count up, and platelets as well... it really was too early for her to start chemo, but the cancer wasn't going to wait for her to get strong enough to really fight it, so the treatment is kicking her butt. She's still in good spirits, just sleeping a lot.

I got my first CA-125 screening done, and the results came back. I'm at a 9, so I'm Mom's goal. =)

John and I moved into the house today, and put the RV in storage for a few weeks. We'll still be able to go to FL to pack up my apartment, but it'll be an even shorter trip now, just two to three weeks, and the doctor wants him back closer to the two week mark. A learning lesson for you, don't run in flip flops, ankles get shattered that way.

We have to get the house put back together from the tenting we had done... our neighbors were nice enough to house our food and plants for the week. It will be a good opportunity to go through the things we do have and see what needs to go.

Relay for Life is tomorrow. We're signed up in Dublin, and I'm just picturing the three of us (and John's dog) getting in there... Mom in her wheelchair, me pushing her, John in his wheelchair, pushing himself, and Dudley (John's dog) leading the pack. Makes me laugh just thinking about it. =)

I think that covers things for now. Mom has shots both days this weekend to work on her white count, and hydration on Monday, so we'll see how things are from there. Wish us luck, and keep us in your prayers. =)

Saturday, June 14, 2008

What Are You Worth? Quote

I just saw The Bucket List. Great movie. In the opening of the movie, Morgan Freeman is narrating, and talking about how people measure the sum of their life's value. A great line, and one I feel really applies to Mom, is that you measure the sum of your life's worth by the people that measure themselves by you. If that's the case, then Mom's life is beyond measure.

Friday, June 13, 2008

Home, Week 11

Mom had chemo today, just the one drug that shouldn't make her nauseous. She hasn't been feeling too good this week, and she's dehydrated, so she'll be going for hydration for the next five days, as of now. Once the house is settled back down from being tented, we can get started on the things the nutritionist recommended, and that should hopefully keep her from getting dehydrated.

John (my boyfriend that came out here with me), shattered three bones in his ankle today while running in flip flops after his dog. He gets to have surgery next Thursday so pins and plates can be installed, and I've convinced him (wasn't too hard) that it would be easier to have him stay at the house with Mom and I while he's recovering. We'll be burning the flip flops in effigy, and I'll be doing any and all driving for him (it was his right ankle) until he's recovered.

Everything happens for a reason, and I keep praying for serenity and strength for me, and for relief for Mom. Time for me to go take care of my other patient now (just call me Nurse Liv *smiles*), so until next week, or the next drama, God bless.

Sunday, June 8, 2008

Home, Week 10.?

I'm not sure how the pattern of nausea will go with this chemo, it's a little too early to tell. Mom would have been fine on Friday if we had been on the anti-nausea meds right away, and she was fine yesterday. We had some family visitors, so there was some excitement going on, and she was a little slow to start today, and has been blah and a little nauseous (not throwing up) today. So the pattern may be two days after chemo, she feels icky. If that's the case, then we'll adjust the chemo schedule accordingly.

We're getting the house tented (counts the days) next Monday for termites. It'll be easier to get this over and done with now, that way Mom can move on to the rest of her plans with the house. We'll all be required to stay out of the house for 2.5 days, but Mom will be staying out of the house for 4.5 days, just as a precaution. The gas they're using won't leave a residue or linger at all, we just need to either move out or properly seal up any food or things that go in our mouths (toothbrushes), as well as the house plants. Things are already set up for all of this to take place, and we all have places for us and the food/plants to go while we're out of the house, but I figured this would save Mom from telling everyone she talks to about the house. =)

My friend John has been a HUGE help through all of this. He's helping Brooke and Mom get Brooke packed up and organized so she can make her move, he's been taking care of things around the house that need to be done, and he's been a huge support system for me since we've been out here (middle of December, can you believe it?), and now for Mom. He gives great hugs. :D

Keep Mom in your prayers, the strength of all your prayers has been a total blessing, and she's felt the love and received strength from them, so thank you, and God bless you.

Friday, June 6, 2008

Home, Week 10, Chemo Round 1

Alrighty, we're bumping the weekly updates from Thursday to Friday because that's when Mom has chemo. She had her first treatment today, and tolerated it well. She's been a little nauseous this evening, but otherwise, things are good.

We have some news... Rick has been transferred to the Sacramento store, and has decided to make the move on his own. He knows his reasons and timing aren't the best, and this is hard on all of us, but he feels it's something he needs to do for himself right now. So we'll just have to see what the future holds for all of us. =)

Due to the news that diesel gas will be outrageously high until the end of the July 4th weekend, we have decided to delay our trip to FL again, and will be leaving on July 7th. We can't delay things any further than that, or we won't have enough time to organize and pack up my apartment. However, our being around will help Mom get things taken care of in the house so she can have someone rent a room.

Friday, May 30, 2008

Home, Week 9.1

Just got back from the doctor, and Mom's CA-125 has skyrocketed to 1670 this week, whereas it was 900 at the beginning of April, so she starts chemo next Friday. The standard level for a woman who hasn't had cancer is 35, and the desired level for a woman who has had cancer is less than 10, so her numbers are quite high. Pray for her strength, please, she needs all the help she can get right now. =)

Thursday, May 29, 2008

Home, Week 9

Well, a variety of things have happened recently, fortunately, none have to do with Mom's health.

Brooke got engaged this weekend! We all love Joel, and think that he and Brooke are great together, so we're very very happy. =) She's moving down to San Diego in the beginning of July.

With this happening, Mom will really be empty nesting for the first time, so she's pondering what to do. She may end up renting out the entire house and getting a smaller place around here, or she may end up renting out a room or two, she hasn't decided yet. Either way, she wants/needs to work on fixing the house up, so watch out RHI, your skills in taking down wallpaper may be utilized instead of your gardening skills. ;)

She's asked that I stay around for another couple weeks instead of going back to FL on May 31st, to help her get started with the house, so we're postponing our trip by a couple weeks.

I think that about covers things for now. Things were rainy this last weekend in Trinity, but it was still Trinity, so it was wonderful. Trinity always is. Until next time, keep Mom in your prayers. She needs strength to keep things going and improving. =)

Thursday, May 22, 2008

Home, Week 8

Mom's had hydration the last two days, so she should be good for Trinity. We're so looking forward to the trip. Things are crazy busy getting ready, so not much more to report on. =)

Thursday, May 15, 2008

Home, Week 7

Well, I was too early in predicting a plateau, two days of hydration fixed Mom right back up, and she's still soaring. Some friends came over for Mother's Day, and we all worked in the garden (I learned how to dead head roses), so it looks sooo much better now. =) Mom has been getting out and about more, and we're very excited about heading to Trinity next Friday. We're going to hydration next Wednesday and Thursday, just to make sure that she doesn't get nauseous while we're up there, so it should be a great time. =)

A note, our home phone is working again, so calling there is an option now.

Thursday, May 8, 2008

Home, Week 6

Hello all you blog fans! Welcome to this week's installment of "Pat". (sorry haven't had enough caffeine... almost as bad as having too much caffeine).

Mom has been nauseous all week... sometimes not really nauseous, a few times throwing up nauseous. She's showing other signs of dehydration as well, so we went to get infused today, and we're going again tomorrow. Her levels are generally good, but there are a couple that are out of whack, so we're going to fix those, and make some appointments to figure out how we can keep this from happening again (or at least less often).

Otherwise, things are good. She's in good spirits, she's still eating well and drinking a lot, and she got her hair done, so she's (my words) Super Model Skinny Mini Mom. She smiles and nods when I say that. =) I'll work on seeing if I can get her to let me take a picture and post it on here (don't hold your breath).

Mom is totally ready for phone calls and visitors, so please, don't be shy, give her a call on her cell (hopefully we'll have the home phone snafu worked out within a week), and talk to her about when works for coming to visit. She's been trying to call people, but she's had so much going on that it's hard to remember everything.

Until next week! Love and prayers and thanks.

Thursday, May 1, 2008

Home, Week 5

Mom is plateauing, I think. She's been feeling a little nauseous, but we're working on keeping that under control. Her pain is under control, which is great. I know you all are busy with your lives, but when you have a moment, even if it's just your commute time home from work, if you could give Mom a call, just to say hi, I think she would really enjoy that. She would LOVE to have some visitors too. Having something to look forward to is a great distraction, and added bonus, she gets to see people she cares about, and vice versa. =)

We've been going out, both with the walker and the wheelchair, and she loves getting out of the house and feeling normal. We've put an air mattress in her sewing room so I can stop sleeping on the couch, but that can be flipped up so she can still work in there during the day. She just hasn't felt like it too much with the nausea.

She has been getting on the exercise bike we have, just for five minutes a day, to work on her flexibility and strength. She's doing a lot more around the house for herself, so she is stronger, and her endurance is getting better.

Oh, and to all of you at RHI that volunteered to come over and help with the yard, be careful, I think she make take you up on that. ;) She got a kick out of the way that offer was worded. Thank you all for caring for her so much, she really feels the love and looks forward to coming back to work.

Until next week (hopefully, as no news is good news), thank you all, keep the prayers coming, and give her a buzz on her cell when you can (the house phone is still dealing with this little snafu). God bless. =)

Thursday, April 24, 2008

Home, Week 4

Mom had her LAST infusion today! So now we just need to keep her hydrated and her electrolytes balanced, and we're on a good path. We popped by her office this week, and that really perked her up. She loved seeing everyone, and looks forward to going back when she can.

We've started to clean off her cutting table so that she can get back to quilting. Her mind is so active, but her body is limiting her activities, which is frustrating, so she was reminded that there are activities that she enjoys that she can do sitting down. This will help her pass the time without exhausting herself. Excellent suggestion, thank you. =)

Her endurance is getting better, she's not napping during the day anymore, and her appetite is back to normal generally, so she's making progress. We're in the soaring recovery part, and hoping to stretch this out as long as possible. Keep the prayers, cards, and phone calls coming, Mom really appreciates all of it.

Monday, April 21, 2008

Home, 3.5 Weeks

I wanted to clarify something, because I think I've been too protective of Mom. She loves getting cards and phone calls, that's still true. Don't be afraid to call her. If she can't get to the phone or she's sleeping, she won't answer it, or I'll answer it. If she's talking, and she gets tired, she'll indicate that.

She's getting stronger, even though it's only been about three weeks, and I think she'd like to have visitors for short periods of time. I say for short periods of time because she has worn herself out in the past by visiting too much, expending too much energy, and not realizing it until she's exhausted, and then it's too late. She loves seeing people and feeling, for lack of a better term, normal for awhile.

Our schedule varies from week to week, and day to day, depending on what the doctors say is going on, so it may take some patience on all of our parts to get things coordinated, but I really do think that some short visits would perk her up even more. Feel free to call her cell (the house phone had a bit of a snafu, it should be back in a week), and we can work on getting things arranged. =)

I've shown Mom a few parts of this blog (there's way too much for her to read in one sitting), but the first thing I showed her were the comments that you all have left. Between those and the e-mails she's received, she knows she's loved, supported, and prayed for, so thank you again for taking the time to tell her that. It means so much to her. I'll work on getting her to sign on here and post soon.

Oh, and since I don't know who knows and who doesn't, I'm moving (kinda) back to California for a while. Probably for about two years or so. My friend has given me the opportunity to stay here so I can be close to Mom (and the rest of the family of course) and spend more time with her. Since things are so unsure right now, I want to be able to do this, and I would regret it forever if I didn't take this offer. So I'll be going back to Florida to put things in storage and get my car probably in June, and then working my way back here. And if it turns out that in a few years, Mom has been cancer free for awhile, then I'll get on with things. But this is something I need to do right now. I'm happy and excited. =)

Thursday, April 17, 2008

Home, Week 3

It's been a decent week. Mom had hydration every day, including the weekend, but her levels are balancing out quite nicely. She had today off of hydration, and we felt like we were forgetting something, we've gotten so used to going to the hospital for most of the afternoon, LOL. She has hydration tomorrow and Monday, but she gets the weekend off. These are the tests to see how well she does at home with keeping herself at good levels. Things look promising. =)

She did some physical therapy today, since we had already cancelled all the home sessions this week due to our not being home. She's getting back to where she was before this small setback. Her appetite is healthy, almost back to pre-hospital levels, which is wonderful to see.

Mom still loves it when she gets cards, and we read over every one together. All of your love and support is very much appreciated, by all of us. Mom perks up when the mail comes, and drops what she's doing to read her cards. It's really sweet to watch. She's also enjoying the phone calls, and her strength is getting better, to the point where having visitors isn't too taxing, as long as she doesn't have too many in too short of a time. You know how too much excitement can be exhausting. =)

That's all for now. We'll continue to keep you posted. Until next week (no news is good news), keep Mom in your prayers, and thank you.

Thursday, April 10, 2008

Home, Week 2

Mom has had a crazy week. Her nausea was bad this weekend, and she's been getting fluids via IV for a few days now. She hasn't thrown up since Monday, and her appetite is coming back, so I think this step back is over.

Finding a balance for her nutrients is going to be a huge challenge, because her system is so delicate right now, she can have too much or too little of one element or another from one day to the next. We're all doing good though, and it's a learning experience for the entire household.

Thank you all for your love and support and appreciation. We're really glad things are getting better, and we're glad that we've been able to be together through this whole thing. I'm glad I've been able to do this blog, to keep you informed, as well as a way for Mom to look back when she's up to it and see what she's been through. She asked if we'd taken pictures of her while she was in the hospital, and we all looked at her funny. We told her that we didn't think she'd want to see what she looked like, and that a written account may be enough for her to absorb. Just goes to show, Mom is full of surprises. =)

Tuesday, April 8, 2008

Home, Saturday thru Today

Mom has been nauseous. She's thrown up pretty much every night, so we took her to get IV fluids today to help with the deyhdration. Her meds have been fiddled with, so hopefully we're finding a good combination. She's kept everything down today, so that's a positive. They did tests to see if she has a blockage, just as a precaution, but I'm seriously doubting she does. They were concerned about her kidneys, there was a chance she was going into renal failure, but I think it's been caught in time.

She'll be getting IV fluids all week, to make sure she stays hydrated. She's walking a fine line right now between not enough and too much of everything, so it's a real learning experience for all of us. One step at a time, one day at a time, right now the goal is to keep her out of the hospital. So far, so good. =) Keep her in your prayers, she needs all the strength she can get.

Thursday, April 3, 2008

Home, Week 1

It's been a good week. Mom is home, things are good, we're all very optimistic. I'll probably be stretching out the time between posts now to every week or so, unless something is going on. Otherwise, no news is good news, and good progress. =)

Monday, March 31, 2008

Home, Days 2-5

Things have been going pretty constantly around here, so time is kinda limited to when Mom takes naps. =) She's had the home health company out, so she's got a nurse and a physical therapist working with her a couple times a week. Otherwise, we've been hanging out, watching some TV, and playing games. I (Olivia) have actually been cooking (no, don't call poison control), and making sure Mom is safe and taken care of during the day. She's been doing pretty good taking care of herself though, what with showering, getting dressed, getting up and down stairs, and those sorts of things, so we're doing pretty good.

She hasn't made her way to the computer yet, but that's on the goal list. Mom does say hi, and thank you for all your love, support, and prayers. She's waving from the next room as I type this. =)

Thursday, March 27, 2008

Home, Day 1

SHE'S HOME!!! *happy dance*

Wednesday, March 26, 2008

Acute Rehab, Days 21-22

Mom's medications have been adjusted, so her nausea is under control now. She's still coming home on Thursday, so we're all excited and nervous at the same time. But overall, we'll be really glad to have Mom home again. =)

Monday, March 24, 2008

Acute Rehab, Days 17-20

Mom was nauseous this weekend, so they've put her on IV fluids. The plan is still for her to come home on Thursday, so hopefully things can get straightened out by then. She'll have people coming to the house for therapy and things, so they'll still be making sure she's okay, even when she's home.

Thursday, March 20, 2008

Acute Rehab, Day 16

Mom was moved to a private room today, which is most likely where she'll be for the next week. I got to see her walk down the hallway with her walker, so I've been there for her first (again) steps, and now her most recent steps. Things will most likely be status quo, with steady progress, until she comes home. Keep your prayers going that she doesn't have any further setbacks. =)

Wednesday, March 19, 2008

Acute Rehab, Day 15

YES!!! Mom is scheduled to come home next Thursday!!! She's been walking up and down stairs, walking all around, sitting up on the side of the bed to eat, all sorts of wonderful stuff. She still gets worn out easily, but she'll be functional at home!

Tuesday, March 18, 2008

Acute Rehab, Day 14

I (Olivia) heard a beautiful saying today, and I wanted to share it. I was talking to some friends out here about when Mom gets better, comes home, and is able to take care of herself, and how we'll be leaving the area once all that happens. Oddly enough, I miss Florida, and being out here since the middle of December has been an experience, and time I wouldn't trade for the world, but I do need to get back to my apartment, if just to water my orchid and drive my car.

One of my friends said "there will indeed be a rainbow in our hearts at that time", which I just loved. Just like you need some rain with the sun to make a rainbow, you need the hard times to appreciate the good, and the leaving of someone to appreciate having them around.

My mom is the strongest woman I know, and I admire her endlessly. She has had a tough life, and she's come through it with her grace and sense of humor intact. I love her more than anything in this world, and since you know her, you must know what I mean, and why. Sorry to have made this post not about Mom's health, but I felt the strong need to share that saying with you.

Monday, March 17, 2008

Acute Rehab, Days 10-13

Mom had therapy on Friday and Saturday, and both were good days. No therapy on Sunday, so she kicked back and just relaxed. Today, she had therapy, and went up stairs! Six steps, and she did it twice, not just one-by-one, but one foot after another! She was really happy.

The spot where the trache was is almost totally closed up. It's taken longer to heal than we were told, but she's been taking longer to heal for everything, so this isn't something that alarms us. They basically just have a bandage over it right now.

We've been telling her bit by bit the things that you all have been reading about for the last few months. Because she was sedated for so long, there are a lot of things she doesn't know about. When she found out how long she was in ICU, she was absolutely floored. Not that I blame her. And with Easter coming up, this will be another holiday that she's in the hospital. But she's up in spirits, and we're happy to be with her.

Thank you all for your thoughts and prayers. They're working, but she's not home yet, so please, keep them coming. She also loves to get cards, so you can send them to the house, and we'll be sure to bring them in to her. Thank you again.

Thursday, March 13, 2008

Acute Rehab, Day 9

Mom had her therapies today, which went well. She has two other roommates in the room she's in, so the space she's in is rather small. There's talk about moving her to a private room, but until then, please don't send any flowers to her, or anything more than cards right now, because she is feeling cramped with the stuff she has to have around her already. =) The thought is appreciated, but the timing just isn't good right now.

Wednesday, March 12, 2008

Acute Rehab, Day 8

Mom had her evaluations again today, and things went well, so she's starting therapies again tomorrow. She was a little nauseous this afternoon, but that passed.

Tuesday, March 11, 2008

Acute Rehab (continued), Day 7

Okay, day 1/7, however you want to look at it. =) Mom was moved back to the rehab floor today, so the strenuous days will be happening again. Hooray for rehab! =)

Monday, March 10, 2008

Hospital, Days 1-4

Okay, sorry to leave everyone hanging. Y'all knew as much as I did. Mom only spent one night in CCU. She was septic, which is what they think caused her pain and breathing problem. She did not have a heart attack.

She was moved to the medical/surgical floor Friday, and then the oncology floor on Saturday, where she has been since. She's been moved so much because of a lack of room space.

She's not quite ready to go back to the rehab floor, but there's also no room on that floor right now. She does have her cell phone with her again, so phone calls, flowers, visitors, etc., can go through her.

Keep the prayers coming. =)

Thursday, March 6, 2008

ICU (again), Day 1

Pardon my french, but fudgesicle. Mom couldn't breathe this morning, and had chest pains, so they moved her into ICU. They have to do some scans to see what's going on, make sure she didn't have a heart attack, and figure out a game plan. It's not nearly as major as the last time she was in ICU (thank God), but it's still ICU. This time, it's mostly for observation, just to make sure she's okay. Pray extra for her today, please.

ICU rules are back in force. No visitors except for immediate family, no flowers, and she can't have any valuables in her room, so her cell phone is back at the house for now. Cards are more than welcome, they're encouraged, so you can send them to the house, and we'll make sure she gets them.

As it was pointed out to me, Mom is developing a pattern. She gets better, then has a setback, is on a plateau for awhile, then gets better again. So this is just another one of the setbacks. Still, grrrrrr.

Wednesday, March 5, 2008

Acute Rehab, Day 6

Better day! Mom walked to the nurse's station down the hall and back today with her walker. The therapists are saying at this pace, she won't need the walker at all pretty soon. Hooray! =)

Tuesday, March 4, 2008

Acute Rehab, Day 5

Good day! Mom walked to the door of her room and back to her bed twice with a walker! And *lightbulb*, I think they've figured out how to fix the nausea. Apparently, that can be a side effect of dehydration, so Mom's drinking a lot more liquids, and feeling better! Ta-da! Time to do a happy dance, and keep her in your prayers.

Monday, March 3, 2008

Acute Rehab, Day 4

Mom had some pretty bad nausea today, but she still did her therapies. She says she probably didn't do as much as they wanted her to do, but the fact that she pushed through her nausea is an improvement. She was sitting up in a chair for awhile too. Keep her in your prayers, she's still fighting. =)

Sunday, March 2, 2008

Acute Rehab, Day 3

No therapy on Sundays, so it was a kick-back day, and Mom enjoyed the Sunday evening programming on TV. =)

Saturday, March 1, 2008

Acute Rehab, Day 2

Mom had her evaluations today with all her therapists, and everything went well. She was a little nauseous, but she pushed through.

Friday, February 29, 2008

Acute Rehab, Day 1

Mom moved today, and we got her settled in to her room in Walnut Creek. The therapy schedule they're starting her on is very intensive, so she's going to be exhausted every night.

If you're wanting to visit or send flowers, Mom has her cell phone with her, so you can give her a call and work things out with her. Just be prepared for the probability of a short visit, because of her therapy wearing her out.

They prefer to not have visitors around meal times or during therapy, so visiting times will be pretty limited, probably 7-9 pm every evening. If it's an American Idol night, you'd better be willing to watch it with her, and chat during commercials. =)

Thursday, February 28, 2008

Rehab, Day 23

Mom didn't sleep well last night, and she's been nauseous, so she chilled today, prepping for the move.

Wednesday, February 27, 2008

Rehab, Day 22

Rick and I checked out the two acute rehab facilities today, and we've all decided that Walnut Creek would be the best place for Mom, so she should be transferred there on Friday. She was rather nauseous today, so she didn't do physical therapy or eat very much, but hopefully that will be stopping soon.

Tuesday, February 26, 2008

Rehab, Day 21

Mom got her trache out today! She looks great, and sounds great. Her nausea is still around, but not as strong, and she's been managing her pain well. The odds are that she will be moving to an acute rehab facility this week, most likely in Walnut Creek or Castro Valley. The theraphy she receives at the new place will be intensive, around three hours a day, which will be exhausting, but great for her recovery. Cards can still be sent to the house, and will be brought to her to read. Comments on here and e-mails to her e-mail address will be seen by her when she gets home (should be soon!), so please keep her in your prayers. She still needs your strength. =)

Monday, February 25, 2008

Rehab, Day 20

They did a brain scan today, because a neurologist has been called in to consult. The nausea, as well as a couple other things, are saying that it could be something neurological, so they gave her contrast and put her through. She really hasn't been resting well at all, and this whole situation is just miserable for her. We're hoping it shows something, because this plateau of progress is frustrating for all of us.

Sunday, February 24, 2008

Rehab, Day 19

Mom actually had a little physical therapy, which was a pleasant change of pace. She did pretty good, pushing through the nausea.

Saturday, February 23, 2008

Rehab, Day 18

Her sister was in for the morning, but then had to catch her plane back home, so Mom kicked back the rest of the day. The nausea is really kicking her butt sometimes, and the pain from her ostomy isn't helping any.

Friday, February 22, 2008

Rehab, Day 17

Mom had some physical therapy and some nausea, we're hoping that the reduction of pain medicine will help with that, but still keep her out of pain.

She also had a surprise (well, surprise to her) visitor! Her sister Chris was out from Iowa, so that was a huge boost for Mom.

Thursday, February 21, 2008

Rehab, Day 16

The talk now is that the trache will be coming out on Monday, because the fluid around her lungs looks like it's not changing. There was concern about taking it out because of Mom's nausea, but they've lowered the amount of pain killer they're giving her, so that may help with the nausea. The nurses are also getting better about staying on top of things, and anti-anxiety medication takes the edge off, so a balance is being worked on.

When the trache comes out, they'll watch her for three days, and then probably send her on to an acute rehab facility where she can get more intensive physical therapy, and the hope is that she'll be going home within a couple weeks from entering the new place. So there's a little craziness happening, but it's just like all the other transfers she's had, where there was anxiety beforehand, but once settled in, she was fine.

Wednesday, February 20, 2008

Rehab, Day 15

Her appetite is getting stronger, but she's not sure where to stop sometimes before feeling too full, since it's been so long since she's eaten a "normal" sized meal. Otherwise, status quo.

Tuesday, February 19, 2008

Rehab, Day 14

Things are still status quo today.

Monday, February 18, 2008

Rehab, Day 13

Some more physical therapy today, and hasn't slept very well recently, but that may be due to pain. Trying to figure out what to do about that as well.

Sunday, February 17, 2008

Rehab, Day 12

A little physical therapy today, surprise surprise, but she threw up a little bit during it. Otherwise, a good day.

Saturday, February 16, 2008

Rehab, Day 11

Kick-back day. A little nausea, but she's working on figuring out what's causing that.

Friday, February 15, 2008

Rehab, Day 10

Another pretty kick-back day caused by nausea. No physical therapy on weekends, so it should be a kick-back weekend too.

Thursday, February 14, 2008

Rehab, Day 9

Mom wasn't feeling too good today, she was nauseous, so she kicked back today and rested.

Wednesday, February 13, 2008

Rehab, Day 8

More physical therapy today, and Mom wasn't nearly as nausious as she was yesterday. She's loving her American Idol, and watches it every night it's on.

Tuesday, February 12, 2008

Rehab, Day 7

Turns out, there's some fluid around her right lung again, so they're waiting to take the trache out to see if that fluid is indicating an infection. She was pretty nauseated today, so she didn't eat much. She did go outside as part of physical therapy though, so that was nice. She got to feel the cool air again.

Monday, February 11, 2008

Rehab, Day 6

Mom didn't get her trache out yet, so that should hopefully be happening tomorrow. Physical therapy had her walking with a walker, and she did a couple pretty good lengths with that. She is also eating more.

Sunday, February 10, 2008

Rehab, Day 5

Another pretty kick back day. =)

Saturday, February 9, 2008

Rehab, Day 4

Mom had a hard time sleeping last night, so she slept this afternoon. There's no physical therapy on weekends, so it was a kick-back day.

Friday, February 8, 2008

Rehab, Day 3

Things are still about the same. Physical therapy, solid food, upbeat and awake. =)

Thursday, February 7, 2008

Rehab, Day 3

More progress! Mom is probably going to get her trache out on Monday, she was sitting in a chair a lot today, she's getting settled into her room, and her appetite is growing. She was nauseous today, but kept things down.

Wednesday, February 6, 2008

Rehab, Day 2

Mom had solid foods today, and she's requested fresh fruit with every meal. She's eating more, which is wonderful, so she can get and keep her strength up, and get better and come home. She's staying awake pretty much the whole day now, not sleeping all the time, so her body is saying it doesn't need as much rest, another good sign. Keep your prayers up, she's not home yet, but she's a lot closer now. She's impressed all of her medical staff and care givers, wherever she's been, with how rapid and strong her progress has been.

It has been recommended to not have any personal items where she's at, at least not until she can get more settled in, so any cards should be sent to the house, and we'll be sure she sees them. Thank you for all your love and prayers. =)

Tuesday, February 5, 2008

Rehab, Day 1

Mom was moved today to a rehab facility that specializes in patients needing help with respiratory rehabilitation. They can also help her with getting up and around, and eating, so this is a step in the right direction. She got the plug put on her trache today, so she's getting oxygen through her nose.

They're very strict at this new place, and are allowing immediate family to visit, but that's about it. It's looking like the next step from here will be home, although she could go to San Ramon before, there's nothing definite yet.

Monday, February 4, 2008

Upstairs, Day 1

Mom moved out of ICU!!! She's upstairs now, and doing fabulously. She drank some water today, and didn't seem to have problems with that, so she's making more progress. There's talk about taking the trache out soon, because she can get oxygen through a nose thing if she needs it, and she's not having problems swallowing.

If you do come visit her, please be mindful of the visiting policies, as she still needs to do more recovery. She is also very sensitive to smells, so don't bring anything that has a scent to it, or wear any strong smells. She may not be in this hospital for very long, as there's talk of transferring her to a rehab facility that would be more specialized for her.

Sunday, February 3, 2008

ICU, Day 38

Another great day. We watched the Super Bowl, and hung around. She's eating more food now, and getting her appetite back. She also walked some with a walker today, so she's getting stronger. It's so wonderful to hear her voice again. It was a long month of head nods and shakes. With her being awake more during the day now, she wants to play games to help pass the time, another good sign. =)

Saturday, February 2, 2008

ICU, Day 37

Mom was up and talking a lot today. She's awake a lot more often, and remembering a lot more things too. She's wearing her valve a lot now, because she knows that she has to wear it to get rid of the trache. She doesn't like it, but she knows it's best.

Friday, February 1, 2008

ICU, Day 36

*happy dance* Mom had a great day! She had the valve on for four hours this morning, she's talking stronger with it on, she stood up during physical therapy, and even took a few steps! She also had dinner tonight. A few of the things looked really unappealing when they were pureed, but the chocolate ice cream and mashed potatoes were worthy of a few bites. They also added some thickener to some orange juice, so she's not limited to just apple sauce. They also took the ventilator out of her room today, because she's doing so well on the collar. Yay! =)

Thursday, January 31, 2008

ICU, Day 35

Mom had a ho-hum day... just more practice on the same things. But more progress soon. =)

Wednesday, January 30, 2008

ICU, Day 34

Mom had a great day. She was moved to a different room yesterday, so she has a view of outside, and more privacy. She's been working today to use her valve more, and she's been eating apple sauce. She also got her NG tube out of her nose, for the first time in two months. Her nose is a little tender, but she's very happy to have it out. There's talk now about moving her to a rehab facility, but nothing definite yet. Keep Mom in your prayers, and throw one in for Mary Ann (her nurse) too. =)

Tuesday, January 29, 2008

ICU, Day 33

Mom was worn out today. She did a lot of working out this morning, so that exhausted her for the rest of the day. But she's still improving. She's had Mary Ann for a nurse lately, and she's a wonderful nurse. She's been pushing Mom to do things for herself, and to get better in general, and it's working fabulously. She was the first one to start pushing things, to get Mom off the sedation and to start the rehabilitation. =)

Monday, January 28, 2008

ICU, Day 32

Mom had the valve on a lot of the time today, so she was talking a little bit, which was really cool. She also had physical therapy and speech therapy, so she was really worn out. They changed her trache size today so that she won't have to push quite so hard to talk, so she's doing great.

Sunday, January 27, 2008

ICU, Day 31

Mom had more physical therapy today, and has been on the oxygen collar all day. She had the valve on for a little while, and made her first sounds today, but it was a foreign feeling having it on. She had to adjust her breathing because the valve is a one way valve, so she can get air in from it, but has to breathe out through her nose or mouth. With more time, she should be able to adjust to it. She also had a speech therapist come in today, and they worked on talking. She was also able to swallow with the valve on, but they didn't try any food or liquid yet. More progress tomorrow. =)

Saturday, January 26, 2008

ICU, Day 30

Mom had a great day! She went on the collar at noon, and at 7pm, she's still on it. They'll probably take her off around midnight, then put her back on in the morning so she can rest. They tried putting the valve on so she could talk (the oxygen mask would go over that, so she'd still be getting a slight concentration), but she coughed and it flew across the room, so they're sticking with oxygen for today. She also had more physical therapy, which exhausted her, but she's doing great.

Friday, January 25, 2008

ICU, Day 29

Mom did physical therapy again this morning, and was sitting up some more. She was also on the CPAP setting for quite a few hours, so she's staying strong. There's talk about her getting the valve tomorrow so that she can talk again. Things are looking up. =)

Thursday, January 24, 2008

ICU, Day 28

Mom was on the CPAP setting for 12 hours today, so she was initiating all her breaths, which is good. She had more physical therapy today, where she was sitting up, moving her feet and legs around, so she was busy today. I talked to her doctor, and he was saying that when she is breathing on her own consistently, there is a possibility of moving her to San Ramon, which would be fabulous. That way, she'd be closer to home, with a staff that she knows, and she can finish her rehab there.

Wednesday, January 23, 2008

ICU, Day 27

Mom didn't get on the collar this morning, but she did have the vent turned down so she was doing the work for a couple hours. She's also been helping the nurses when they turn her, and started a little physical therapy today, so she's had a busy day.

Tuesday, January 22, 2008

ICU, Day 26

Mom really worked hard yesterday, and she was off the vent for two hours this morning. So she's a little worn out. She's spent the afternoon on sedation, but she's getting good rest. They may try to take her off the vent again tonight. Either way, she's getting better.

Monday, January 21, 2008

ICU, Day 25

Mom did fabulous today! She was off the ventilator for about 20 minutes this morning, breathing on her own. It got to be a little too much, so they put her back on the vent, but she was alert and communicating a lot today. Rick, Brooke and I were all there this evening, and she was smiling and making faces, so her sense of humor is coming back strong. And tonight, they took her off the vent again for an hour, and she did great! So she's really feeling better, we are sooooo happy! Keep the prayers going, she's not out of ICU yet, but she's well on her way. =)

Sunday, January 20, 2008

ICU, Day 24

Mom's stats are steady, and she's breathing on her own. The ventilator is on as backup, but it's set very low. They're saying they're going to take her off the ventilator tomorrow and put her on a collar, which will provide her with oxygen, but no pressure. We'll see how things go.

Oh, and the mentions of swelling before, I talked to the doctor about what's causing that. He said that because she's being pumped up with so many fluids, there's no other place for them to go, so the cells are taking up the extra fluid. It's strictly a cosmetic thing for her, nothing to worry about, and when she's not getting so much fluid, the swelling will go away.

Saturday, January 19, 2008

ICU, Day 23

Mom is doing even better today. They kept her a little more sedated today, but she was still waking up to see people sometimes. Her stats are under control, so she just keeps pushing on.

Friday, January 18, 2008

ICU, Day 22

Mom had a good day. She's not being sedated, so she is awake a lot more and responsive. Her white count is normal, her temperature has been below 100, so the infection(s) are being taken care of with the antibiotic. Now she needs to get off the respirator so she can get up and about. She's having a hard time getting comfortable, but she can't tell us what's going on because of the trache, so it's a game of yes or no questions, and all she can really do is nod or shake her head. I think we're doing well enough sometimes, but it's got to be frustrating for her. Good progress though.

Thursday, January 17, 2008

ICU, Day 21

Mom had a good day today. She got the chest tubes out, the stomach bulb tube out, her blood pressure is up enough that she doesn't need the medication anymore, and they're working on lowering her sedative so that she is with it more. She was even able to "talk" to Rick. Pray for more good days. It was a busy day for her, but a good turning point.

Wednesday, January 16, 2008

ICU, Day 20

Mom's blood pressure is still low. They gave her blood and blood pressure medication to try and get her stabilized, but it's still low. Her blood sugars are down, which is good (the insulin helped). Her temperature is still a little high, which isn't good. We're still playing the waiting game.

Tuesday, January 15, 2008

ICU, Day 19

Mom is being kept sedated today so the trache can heal up more solidly, and she can rest and heal. Her blood pressure is a little low, so they're keeping an eye on that, but everything else seems to be stable. It's American Idol's premiere tonight, so we'll be watching that. One day at a time is the mantra.

Monday, January 14, 2008

ICU, Day 18

The procedures went well. The trache went in, so she doesn't have the ventilator in anymore. She looks so much better, and this will help her heal faster. She has a couple tubes, one on each side of her chest, to keep the fluid coming out from around her lungs. The tubes are only temporary, until the talc takes full effect. She started out shivering, and then developed a slight fever, which is probably a reaction to the talc. Tylenol and a cool washcloth on the forehead has helped cool her down. She's resting, so now it's just a matter of time.

Oh, and Michael G., one of the night nurses, is also really awesome. =)

Sunday, January 13, 2008

ICU, Day 17

Mom had a fever today, but they had her off sedation for awhile. We got to visit with her, she was able to shake her head a little bit for responses, but she looked pretty out of it. Hopefully, the procedures tomorrow will get things moving, because her progress has been rather stagnant.

Saturday, January 12, 2008

ICU, Day 16

It's 11:00 and they're taking her in now to drain the abscess. I was talking to the nurse and the nutritionist (unofficially), and there's talk about the trache next week, as well as doing something about the fluid that keeps collecting around her lungs. One possibility (again, nothing official yet, just possibilities) is to put in chest tubes to keep the fluid coming out without them having to manually drain it. They want to keep the fluid out so she can keep breathing full power without the resistance the fluid is creating. When we know how things went, it will go in here. Pray extra hard for her this morning.

It's 4:30 now, and she's had her abscess drained. They've sent the fluid they got out over to the lab to see what was in it. There was a little blood in there, but they're not sure what else, so we can only wait.

They're going to go in on Monday morning and put in the trache so she can get off the respirator, and they're also going to put some talcum powder around her lungs to help prevent the fluid from coming back.

Friday, January 11, 2008

ICU, Day 15

Mom's abscess needs to be drained. They're going in tomorrow morning to drain it, and they'll be using a CT machine at the same time so the can have eyes on the needle. They're not cutting her open, as she's been cut open enough lately. Her temp is still a little high, but it's not a fever, and her white count is going down more. They figure the abscess has a lot of yeast and a little bit of bacteria in it, since she's been on anti-biotics that would kill the basic viruses. There's no active talk about the trache yet, but the calendar is being watched. The fluid around her lungs is coming back again, so there's no rest for the weary. Keep her in your prayers. She's still hanging tough.

Thursday, January 10, 2008

ICU, Day 14

Mom got her teeth brushed with a real toothbrush and toothpaste, and her hair washed with real shampoo and water today. Audrey is a blast of a nurse. There is no verdict about what do to with the abscess, or what to do about a trache. Her white count has gone down more, and her temperature is staying pretty normal now. Her swelling has gone down more too. Her left side looks great, her right side is almost normal. So it's just a matter of waiting to see what the doctors say. I've been telling her every day this week what day it is, and reminding her that her sister comes out on Friday, so she'll fight to be better so she can visit with her.

Wednesday, January 9, 2008

ICU, Day 13

The results of the CT scan showed that Mom has an abscess in her spleen. There's talk about draining it, but that could be trouble with her lungs struggling still. There's more fluid in her lungs, and talk about a trache because she's been on the respirator for so long. She still has a fever, but it's not as bad. Her white count is down some (yay), and she has more color in her face (she was looking a little pale yesterday). Her swelling has gone down a little bit as well, in both sides. She's still communicating with head nods and shakes (subtle, but they're there) when you ask her questions, as long as she's not sedated. They also have her on what the nurses like to call Milk of Amnesia, so she won't have to remember any of this happening to her. Keep her in your prayers.

Tuesday, January 8, 2008

ICU, Day 12

Mom's white blood cell count is up. It's been up the last two days (that I know of), and her temperature has gone up and down, staying on the up side more than the normal side. They did a CT scan this morning, but I don't know the results yet. The doctor is thinking it's an infection in her abdomen, due to all the work they had to do in there, but there won't be a game plan until after the scan is read.

Monday, January 7, 2008

Thanksgiving to ICU, Day 11

Okay, I figured that since it's looking like Mom will be out of commission for a little while, it would be easiest to create a blog to keep everyone updated as to what's going on with her.

I'll start by summarizing what's happened so far. Mom went in to the hospital with a blockage in her small bowel on Thanksgiving. She was in and out for almost a month, but mostly in.

She had surgery on December 27th to get something happening. The doctors removed 10 feet of her small bowel and she now has an ileostomy. The parts that were killed by the radiation, as well as the blockages were all in that section, so that's the good part. The bad part was that there is still cancer on the rest of her small bowel, and it has moved up to her lung. Doing surgery to remove those areas of would be overkill. Think grains of sand on sandpaper, that's about the size and population of the cancer on the rest of her bowel and lung. The doctor said the surgery went well, and he was pleased with everything they were able to get. He also said it was a major surgery, and that her body would be in shock. They took her into ICU after recovery, and got her settled in.

In the middle of the night, Mom had some problems. Her heart was struggling, she had a lot of fluid in her lung, and she developed a bleed in her abdomen. They took her back into the OR, removed the fluid from her lung, and fixed the bleed. They also attached a pump to her stomach. They put her on a ventilator, sedated her, and kept her blood pressure and clotting in check with medications. They also had to give her more blood, because she lost a fair amount from the internal bleeding.

She's been getting better slowly but surely. She has good days and bad days, but things are looking up right now. They've drained her right lung three times, and her left lung once. I asked the doctor why the lungs keep filling up with fluid, and he says it's most likely due to the cancer.